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12/10 UPDATE: Bad news and Good News
3 months ago
General
All right, bad news first
My doctor called me and let me know that there were multiple lesions on my brain and though he couldn't say for certain it is consistent with multiple sclerosis
Good News!
I'm not crazy. Ive been begging and pleading with the doctors to please give me an MRI for at least the past 2 or 3 months and they brushed me off
Ive already got a referral to the neurologist so they can go into my MRI in greater detail and then come up with a game plan.
I haven't really looked into MS treatment yet so I'm not sure how quickly I can get back to normal, or if thats evn possible. But Im looking on the sunny side here! Its not a mystery anymore! I know this is big, life altering news really but I think I'm kind of just relieved or in shock at the moment
Thanks again to everyone for sticking with me and your encouragement. I'll update again as soon as I learn more.
EDIT:
I love you all so much and thank you for all the kind notes and encouragement. I don't really have IRL support outside of my little family and so I really treasure all of you! I feel like my words sometimes aren't able to convey it, but I sincerely appreciate you all!
My doctor called me and let me know that there were multiple lesions on my brain and though he couldn't say for certain it is consistent with multiple sclerosis
Good News!
I'm not crazy. Ive been begging and pleading with the doctors to please give me an MRI for at least the past 2 or 3 months and they brushed me off
Ive already got a referral to the neurologist so they can go into my MRI in greater detail and then come up with a game plan.
I haven't really looked into MS treatment yet so I'm not sure how quickly I can get back to normal, or if thats evn possible. But Im looking on the sunny side here! Its not a mystery anymore! I know this is big, life altering news really but I think I'm kind of just relieved or in shock at the moment
Thanks again to everyone for sticking with me and your encouragement. I'll update again as soon as I learn more.
EDIT:
I love you all so much and thank you for all the kind notes and encouragement. I don't really have IRL support outside of my little family and so I really treasure all of you! I feel like my words sometimes aren't able to convey it, but I sincerely appreciate you all!
Unfortunately since this is just one more block on the teetering Jenga tower that is my medical history I'm just going to wait until I talk to the neurologist before I do anything. Thank you though!
The neurologist appointment can't get here fast enough. Its like... I know there's something there but not the extent of it and somehow that's almost as frustrating.
Almost.
I feel kind of in limbo since I don't know the extent of the damage until my neurology appointment but at least I have some direction now.
But I did want to say that both got prescribed Rituximab injections every 6 months and I have watched them recover and are living lives basically symptom free now. Even recovered eyesight and mobility issues.
Wanted to share this incase you hear a doctor recommending Rituximab that there are at least 2 counts of it working well. Also that there is alot of hope and good advancements in MS treatments.
Im rooting for you.
I've been trying really really hard to be optimistic and not doom spiral since I don't know exactly what's happening yet but I do think that it's possible I've had this condition since 2011 and it was just waved away and misdiagnosed. I know early diagnosis is important and so I've been struggling to find that silver lining. Thank you for that and the well wishes! It really means the world to me! <3
A happy healthy Blithe is the best dragon!