Ever since May of 2011, I’ve been working very hard to cope with numerous surgeries, complications, and the fact that my vision will soon be gone. This has not been easy, but My Little Pony: Friendship is Magic helped me get through a lot of it.
In 2013, I attended my first BronyCon with my, then, six year old son, Ethan. It took place approximately on the one year anniversary of when my eye exploded from the inside. This traumatic event in 2012 kept me away from my family under extreme bedrest in a hospital for nearly two months. made me totally blind for nearly two months, required six surgeries to resolve, and kept me out of work on unpaid leave for seven months.
Being at BronyCon 2013 was definitely an extreme improvement over where I was in the previous year. This was a wonderful experience as it allowed me to meet the makers of Snowdrop. This animation by Silly Filly Studios, now SFS, is what finally got me on the path of accepting that I am going to be totally blind and how losing all my vision would not be the end of me.
SNOWDROP:
https://www.youtube.com/watch?v=do6RDSwaWek
SFS PANEL AT BRONYCON 2013 – I appear at approximately 21:55
https://www.youtube.com/watch?v=IYqmnCwLhAE
It goes without saying how accepting everyone was at BronyCon. I’m used to people avoiding me. In particular parents with children. However, people genuinely wanted to talk to me, ask me questions about what it was like to have my condition, and most importantly parents shared how most were there due to how My Little Pony: Friendship is Magic did something to empower their children and they wanted in on the convention to find out what it was.
Realizing how those with limitations, special needs, and/or disabilities, like myself, had found a haven within the “Brony Fandom”, I went about suggesting to the operators of BronyCon about how they should put on a panel about how the show gives those with limitations a much needed sense of acceptance, understanding, empowerment, and, most importantly, community. Their response was for me to submit to do such a panel. So, I did, got accepted, and put on the very first Coping with Disabilities Through Pony presentation in August of 2014.
CWDTP – BRONYCON 2014
https://www.youtube.com/watch?v=Rtp8VVIVOGY
The first presentation focused on humanizing what typically is seen as cookie-cutter stereotypes for those with special needs. It was also an opportunity for me to work with Meredith Sims, (Writer and Voice of Snowdrop), to allow those in attendance to get an idea of what went into making what has become a very empowering animation for anyone seeking to build self-esteem and self-acceptance despite any label they may have, or have been given.
Unfortunately, just before I was to put on the presentation in 2014 with my team, I had to go on FMLA from my job due to my degenerative condition making it impossible to perform the duties of the job I had held for four years. This meant I had very limited income and needed to sell a good number of personal items in order to afford what I needed to for the presentation. It was all worth it, but I didn’t know if I would be able to return to work given the nature of my condition.
2015 rolled along with my condition not improving. However, my determination to advocate for myself along with others with special needs, limitations, and/or disabilities only grew. This encouraged me to sign up to put on a follow-up panel at BronyCon 2015. This one entitled, “Coping with Disabilities – Being 120% Cooler”.
CWDTP – BRONYCON 2015
https://www.youtube.com/watch?v=IyJ9tjQAQq4
Despite a number of unexpected complications with the A/V equipment, I worked with my team to help provide even more resources towards helping people self-advocate for themselves. There was a lot more I had hoped our team could do, but the A/V issues cut into a lot of our time. Fortunately, two of our team members were able to fulfill some of what was not able to be done as a presentation for the Harrisburg Autism Society while Mary Rhodes and her daughter, Leah, took the presentation to a whole new level at November’s Ponyville Ciderfest in Milwaukee, Wisconsion.
As with 2014, most of what went into funding the presentation and its supplementary materials came from the selling of personal items. This helped out a lot while also allowing me to part with items that I could no longer enjoy as a result of my continually diminishing vision.
By the end of 2015, I had learned there was no way I could ever return to my employer. My vision had gotten too bad to perform any positions near, or around, my skill level. The best I could manage was to resign. Unfortunately, the resignation came at the very time I found out I needed to have ocular surgery in January 2016 in order to remove infectious blisters that had formed on my dead cornea.
Despite knowing I would likely not make it through the surgery with any vision, I decided to put in to present at BronyCon 2016. I knew we had more to share. Moreover, thanks to Mary Rhodes, I met another individual who works towards bettering the lives of those with special needs, Amanda Robinson. Partnering with her allowed me to build another team that I knew would make a positive difference once we reached the convention.
The surgery to remove the blisters from my eye was a surprising success! However, it caused a complication that opened me up to infection through another part of my eye.
Long story short, I needed three surgeries between January and April of 2016. The most notable being a retina reattachment. The appointments, surgeries, and costs associated with recovery have piled on fast. However, I committed to putting on the best presentation of Coping with Limitations with my team and I wasn’t going to let anything stop me from succeeding in showing how I definitely practice what I preach.
Through solid determination, our team pulled off, in my opinion, our best presentation ever. It was called “Coping with Limitations: Owning Your Cutie Mark” and focused around how you shouldn’t judge yourself, or let others judge you, by whatever label(s) may be associated with you.
We are all individuals. Nobody can be defined by a condition, limitation, special need, or disability as we all respond and cope with what we have in unique ways. To help further this point, the rest of the team presented on how role play and cosplay are quite effective in building social skills, self-acceptance, self-empowerment, and help provide insight into what it is like to be in “Someone else’s shoes”.
With BronyCon 2016 come-and-gone, I have thought of what more I can do to advance upon all that has been done by myself and my team. I’ve also considered how I no longer have anything to fund another presentation.
Because of this, along with a strong need to focus more on coping with my continual descent into total blindness, I am retiring from BronyCon.
Please know that I will continue my positive advocacy activities while working alongside all of my team to ensure a better tomorrow for all those with special needs, limitations, and/or disabilities. I’m just no longer able to do it at BronyCon. I’m also trying to explore other avenues of creativity / inspiration that can prove beneficial in creating an accepting and empowering community for those who go misunderstood as a result of society seeing a label instead of a genuine person capable of more than what a book definition or stereotype may say.
I’m proud of what my team and I have achieved through our efforts at BronyCon. I’m extremely thankful for how those who run the convention gave me the opportunity to advocate through this international event. If BronyCon can provide a stage for improving the lives of everyone, I’m hopeful other venues, events, or businesses can do the same.
Thank you all for all of your support. So many made Coping with Limitations Through Pony the success that it is. Should anyone wish to help continue, or expand, upon the work we’ve started, please let me know.
In 2013, I attended my first BronyCon with my, then, six year old son, Ethan. It took place approximately on the one year anniversary of when my eye exploded from the inside. This traumatic event in 2012 kept me away from my family under extreme bedrest in a hospital for nearly two months. made me totally blind for nearly two months, required six surgeries to resolve, and kept me out of work on unpaid leave for seven months.
Being at BronyCon 2013 was definitely an extreme improvement over where I was in the previous year. This was a wonderful experience as it allowed me to meet the makers of Snowdrop. This animation by Silly Filly Studios, now SFS, is what finally got me on the path of accepting that I am going to be totally blind and how losing all my vision would not be the end of me.
SNOWDROP:
https://www.youtube.com/watch?v=do6RDSwaWek
SFS PANEL AT BRONYCON 2013 – I appear at approximately 21:55
https://www.youtube.com/watch?v=IYqmnCwLhAE
It goes without saying how accepting everyone was at BronyCon. I’m used to people avoiding me. In particular parents with children. However, people genuinely wanted to talk to me, ask me questions about what it was like to have my condition, and most importantly parents shared how most were there due to how My Little Pony: Friendship is Magic did something to empower their children and they wanted in on the convention to find out what it was.
Realizing how those with limitations, special needs, and/or disabilities, like myself, had found a haven within the “Brony Fandom”, I went about suggesting to the operators of BronyCon about how they should put on a panel about how the show gives those with limitations a much needed sense of acceptance, understanding, empowerment, and, most importantly, community. Their response was for me to submit to do such a panel. So, I did, got accepted, and put on the very first Coping with Disabilities Through Pony presentation in August of 2014.
CWDTP – BRONYCON 2014
https://www.youtube.com/watch?v=Rtp8VVIVOGY
The first presentation focused on humanizing what typically is seen as cookie-cutter stereotypes for those with special needs. It was also an opportunity for me to work with Meredith Sims, (Writer and Voice of Snowdrop), to allow those in attendance to get an idea of what went into making what has become a very empowering animation for anyone seeking to build self-esteem and self-acceptance despite any label they may have, or have been given.
Unfortunately, just before I was to put on the presentation in 2014 with my team, I had to go on FMLA from my job due to my degenerative condition making it impossible to perform the duties of the job I had held for four years. This meant I had very limited income and needed to sell a good number of personal items in order to afford what I needed to for the presentation. It was all worth it, but I didn’t know if I would be able to return to work given the nature of my condition.
2015 rolled along with my condition not improving. However, my determination to advocate for myself along with others with special needs, limitations, and/or disabilities only grew. This encouraged me to sign up to put on a follow-up panel at BronyCon 2015. This one entitled, “Coping with Disabilities – Being 120% Cooler”.
CWDTP – BRONYCON 2015
https://www.youtube.com/watch?v=IyJ9tjQAQq4
Despite a number of unexpected complications with the A/V equipment, I worked with my team to help provide even more resources towards helping people self-advocate for themselves. There was a lot more I had hoped our team could do, but the A/V issues cut into a lot of our time. Fortunately, two of our team members were able to fulfill some of what was not able to be done as a presentation for the Harrisburg Autism Society while Mary Rhodes and her daughter, Leah, took the presentation to a whole new level at November’s Ponyville Ciderfest in Milwaukee, Wisconsion.
As with 2014, most of what went into funding the presentation and its supplementary materials came from the selling of personal items. This helped out a lot while also allowing me to part with items that I could no longer enjoy as a result of my continually diminishing vision.
By the end of 2015, I had learned there was no way I could ever return to my employer. My vision had gotten too bad to perform any positions near, or around, my skill level. The best I could manage was to resign. Unfortunately, the resignation came at the very time I found out I needed to have ocular surgery in January 2016 in order to remove infectious blisters that had formed on my dead cornea.
Despite knowing I would likely not make it through the surgery with any vision, I decided to put in to present at BronyCon 2016. I knew we had more to share. Moreover, thanks to Mary Rhodes, I met another individual who works towards bettering the lives of those with special needs, Amanda Robinson. Partnering with her allowed me to build another team that I knew would make a positive difference once we reached the convention.
The surgery to remove the blisters from my eye was a surprising success! However, it caused a complication that opened me up to infection through another part of my eye.
Long story short, I needed three surgeries between January and April of 2016. The most notable being a retina reattachment. The appointments, surgeries, and costs associated with recovery have piled on fast. However, I committed to putting on the best presentation of Coping with Limitations with my team and I wasn’t going to let anything stop me from succeeding in showing how I definitely practice what I preach.
Through solid determination, our team pulled off, in my opinion, our best presentation ever. It was called “Coping with Limitations: Owning Your Cutie Mark” and focused around how you shouldn’t judge yourself, or let others judge you, by whatever label(s) may be associated with you.
We are all individuals. Nobody can be defined by a condition, limitation, special need, or disability as we all respond and cope with what we have in unique ways. To help further this point, the rest of the team presented on how role play and cosplay are quite effective in building social skills, self-acceptance, self-empowerment, and help provide insight into what it is like to be in “Someone else’s shoes”.
With BronyCon 2016 come-and-gone, I have thought of what more I can do to advance upon all that has been done by myself and my team. I’ve also considered how I no longer have anything to fund another presentation.
Because of this, along with a strong need to focus more on coping with my continual descent into total blindness, I am retiring from BronyCon.
Please know that I will continue my positive advocacy activities while working alongside all of my team to ensure a better tomorrow for all those with special needs, limitations, and/or disabilities. I’m just no longer able to do it at BronyCon. I’m also trying to explore other avenues of creativity / inspiration that can prove beneficial in creating an accepting and empowering community for those who go misunderstood as a result of society seeing a label instead of a genuine person capable of more than what a book definition or stereotype may say.
I’m proud of what my team and I have achieved through our efforts at BronyCon. I’m extremely thankful for how those who run the convention gave me the opportunity to advocate through this international event. If BronyCon can provide a stage for improving the lives of everyone, I’m hopeful other venues, events, or businesses can do the same.
Thank you all for all of your support. So many made Coping with Limitations Through Pony the success that it is. Should anyone wish to help continue, or expand, upon the work we’ve started, please let me know.
Category Photography / My Little Pony / Brony
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Indeed. There were so many people to whom I got to talk to and hear how thankful they were for knowing, thanks to our presentations, that they were not alone in how they felt and/or experienced. Being able to realize you're not the only one is a great step towards healing your mind while getting on track for self-acceptance and self-empowerment. :)
It's been an honor to help positively represent all of us who have special needs, limitations, and/or disabilities. Everyone is different, but it is finding the common points instead of defining by the conditions, situations, and labels that will further grow much needed acceptance, understanding, and a true sense of community for all.
*Snuggles the kitty* Thanks so much for all of your support, Kaffre. I'm definitely going to keep on doing all I can to help others. However, I just don't have the resources nor time to do all that is needed to put a fully heartfelt effort into BronyCon anymore. I'm proud of all we did, though, and hope the message keeps on spreading without me being directly there. :)
It's been an honor to help positively represent all of us who have special needs, limitations, and/or disabilities. Everyone is different, but it is finding the common points instead of defining by the conditions, situations, and labels that will further grow much needed acceptance, understanding, and a true sense of community for all.
*Snuggles the kitty* Thanks so much for all of your support, Kaffre. I'm definitely going to keep on doing all I can to help others. However, I just don't have the resources nor time to do all that is needed to put a fully heartfelt effort into BronyCon anymore. I'm proud of all we did, though, and hope the message keeps on spreading without me being directly there. :)
I'd honestly love if you, or anyone else who has been a strong part of the team, would like to continue the work we've started. I'll definitely support you if you should think of any ideas to keep the panel going despite my needing to retire. *Hugs*
I'm sure we'll find other ways to meet and share times, Ari. You're a wonderful friend. Writing and sharing stories with you has been so much fun. You've opened me up to a lot of amazing ideas while expanding upon my understanding of so many things.
I'm definitely still a big Pony fan, and always will be. I look forward to hearing of your FillyCon adventures in August. I'm also excited for when our panel this year goes live on YouTube. It will be most epic to share with everyone what, in my opinion, was the best job we've ever done. :)
I'm sure we'll find other ways to meet and share times, Ari. You're a wonderful friend. Writing and sharing stories with you has been so much fun. You've opened me up to a lot of amazing ideas while expanding upon my understanding of so many things.
I'm definitely still a big Pony fan, and always will be. I look forward to hearing of your FillyCon adventures in August. I'm also excited for when our panel this year goes live on YouTube. It will be most epic to share with everyone what, in my opinion, was the best job we've ever done. :)
Then I am most glad we were able to make such an amazing impression this year. Seriously, and I apologize if this is getting old, I was so happy with how you, Amanda, and Duskie all did. It will certainly be a wonderful view once it is officially released to be seen by BronyCon. :)
Are you looking forward to new episodes starting up tomorrow? Have you heard much about the 2017 movie?
Are you looking forward to new episodes starting up tomorrow? Have you heard much about the 2017 movie?
It was thanks to you that we were able to do the Flash Drives this year, my friend. :) Before that, you helped us to acquire materials that we handed out and had posted for the 2015 presentation. Truly, you have been an ultra supporter of Coping with Limitations Through Pony. Not only that, you are one of the handful of folks who genuinely helped promote the presentation. :)
All you've done to help me and the team advance upon our mission over the years has been astounding. I truly couldn't have asked for a stronger ally in doing what we've managed to accomplish. :)
I may no longer be able to do BronyCon, but I really am keeping hopeful that someone may be able to take the materials in the Flash Drives and expand upon all that has been accomplished so far. There's a lot of ground covered along with tons of helpful resources.
As you were one to receive a Flash Drive, I'm hopeful what you get to see and/or review proves useful to you and anyone you may know could benefit from all the time, money, and research put into each year's efforts.
All you've done to help me and the team advance upon our mission over the years has been astounding. I truly couldn't have asked for a stronger ally in doing what we've managed to accomplish. :)
I may no longer be able to do BronyCon, but I really am keeping hopeful that someone may be able to take the materials in the Flash Drives and expand upon all that has been accomplished so far. There's a lot of ground covered along with tons of helpful resources.
As you were one to receive a Flash Drive, I'm hopeful what you get to see and/or review proves useful to you and anyone you may know could benefit from all the time, money, and research put into each year's efforts.
A lot's gone on in the past few years! The panels were great and helpful, especially since your work was such a negative place that completely lacked the message you were spreading - and at BronyCon others there agreed and understood your message - and I think those're the kinda people you needed to know existed and could be around. (: And it's great you know folks like that are out there, and in other places too! It's hard to do that stuff without income, but you can keep that message going in your life and personal work and interactions with other folks. (: And I think that'll be just fine.
*Snugs* Good points, dear friend. Perhaps, without even fully realizing it, I was trying to make up for what I personally experienced at both of my previous employers? Trying to seek out an accepting environment, like I found with FA, but in real life? Then I aimed for helping others to see that there are good people out there and how it is up to us to positively raise awareness to avoid feelings of anxiety , depression, misunderstanding, and loneliness? To help show, how despite being different, we are all individuals who, at some level, can all find some way to actively be a part of accepting, understanding, empowering, and providing a sense of community no matter how things may have felt in the past, or may appear to be for the future?
You've certainly given me something to think on as I say farewell to the BronyCon activities, dear friend. Thank you. :)
You've certainly given me something to think on as I say farewell to the BronyCon activities, dear friend. Thank you. :)
It's truly been an honor to do all I've been able to do to help others realize how they are more than their label(s). Everyone I worked with was awesome and I'm eager to see where else I can help pave a way for a brighter tomorrow for those of us who go misunderstood, misrepresented, and mislead due to negative, societal stereotypes. :)
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