So a life update.
4 years ago
General
For those whom have spoken with me and know me... they are aware that I am caregiver for my mother who has ALS. As of 2/9/2022, my mom has stopped receiving her tube feeding like before. From what I have been told she will likely pass by next week.
This is a big... change in my life. I have been taking care of my mom since like ... 2017 due to her condition turning into something from what we originally thought was recoverable to being ALS... she was originally diagnosed at the end of 2018.
This is a lot for me to take in... considering from 2017 to now 2022... that is been like 4 years maybe 5 when I consider when I started to take care of her or at least very close to 5.
Many may not understand how like 5 years is to give up a lot in ones life for another and many will understand... not just in a care giving sense but parenthood too for many. I have learned a lot from this express about myself... my faults, weaknesses, and strengths.
As for the future... I do not know, I am still trying to come to terms with the shock of all this and how things will change. That said... I hope to at some point this year get back into art and attempt to do something with my life to honor my mother and her care she gave to me.
I know one of the things I have wanted to do was to learn to use Unity and make a game... and I have a vision for a board game I have made to try and make it into a digital product and well... maybe if I can achieve that I can make a life for myself and live a life long dream I have had in some way in getting into game making. I am simply trying to think of new possibilities for me in order to attempt to achieve when I have put off so much in my life.
I quit my possiblity in progress of my art career due to the pains in care giving and the struggle to balance work and life... I will have that time again to attempt it and other things... but that is still a lot to take in with no certainty.
As of now... I am just hoping to just get through this time.
This is a big... change in my life. I have been taking care of my mom since like ... 2017 due to her condition turning into something from what we originally thought was recoverable to being ALS... she was originally diagnosed at the end of 2018.
This is a lot for me to take in... considering from 2017 to now 2022... that is been like 4 years maybe 5 when I consider when I started to take care of her or at least very close to 5.
Many may not understand how like 5 years is to give up a lot in ones life for another and many will understand... not just in a care giving sense but parenthood too for many. I have learned a lot from this express about myself... my faults, weaknesses, and strengths.
As for the future... I do not know, I am still trying to come to terms with the shock of all this and how things will change. That said... I hope to at some point this year get back into art and attempt to do something with my life to honor my mother and her care she gave to me.
I know one of the things I have wanted to do was to learn to use Unity and make a game... and I have a vision for a board game I have made to try and make it into a digital product and well... maybe if I can achieve that I can make a life for myself and live a life long dream I have had in some way in getting into game making. I am simply trying to think of new possibilities for me in order to attempt to achieve when I have put off so much in my life.
I quit my possiblity in progress of my art career due to the pains in care giving and the struggle to balance work and life... I will have that time again to attempt it and other things... but that is still a lot to take in with no certainty.
As of now... I am just hoping to just get through this time.
Serath Kazaan
~inderezzed
Record every conversation with your mom if possible... hearing her voice will bring back memories and you never know when you need the comfort in the future.
shadom
~shadom
OP
I sadly wish I could do this, but due to ALS... it has taken her voice away from my family and.... even worse I struggle with remembering how my own mother sounded now. But... it is important to just treasure the memories and moments I had with her.
Serath Kazaan
~inderezzed
Yes
A_small_tool
~asmalltool
My god. I can't begin to imagine what all this must feel like. Just know that you have our support, near and far. Take your time and enjoy what you can with her. There will always be the memory in of her in your heart.
shadom
~shadom
OP
Thanks hun, I am sorry we haven't talked in a long while. Just been trying to stay together for a long while now and I have been having a hard time just reach out to people.
A_small_tool
~asmalltool
It's okay, life comes first. Just worry about yourself right now, okay? It's not selfish to take the time you need.
shadom
~shadom
OP
I know and I appreciate it, I do. Just trying to handle stuff 1 day at a time right now.
Hydroplane
~hydroplane
It breaks my heart to hear this... I'm so sorry. Give your mom every bit of care and love you can, if you need a shoulder, we'll be here for you.
shadom
~shadom
OP
Thank you, I really appreciate it hun.
FA+